Fetal Alcohol Spectrum Disorder (FASD) Workgroup

Mission

The mission of the FASD Workgroup is to increase awareness and advance the effective prevention and treatment of Fetal Alcohol Spectrum Disorders (FASD) in New York State through collaboration and coordination. In addition, each participating organization is empowered to examine its own policies, practices, regulations and laws, to determine how it can positively impact the goals of eliminating alcohol use during pregnancy and improving the lives of New Yorkers affected by prenatal alcohol exposure.

Subcommittees

The Workgroup consists of four active subcommittees:

  1. Education and Awareness 
  2. Prevention and Prenatal Screening
  3. Diagnosis and Screening of Children
  4. Interventions and Treatment Services

1. Education and Awareness

Mission: To increase public and professional awareness of FASD and further its prevention.

Efforts may include, but are not limited to, the following areas:

  • assessing current professional education/training resources;
  • identifying and coordinating training activities and educational resources across agencies; 
  • developing educational/public awareness materials;
  • examining K-12 curriculum and lesson plans;
  • design & promote “no alcohol during pregnancy” messages for all women of child-bearing age;
  • design & promote “no alcohol during pregnancy” messages for targeted audiences (such as women with disabilities, college age women, incarcerated women, Native Americans);
  • expanding media and web-based information; and
  • determining strategies to partner with private sector/service clubs and other entities.

2. Prevention and Prenatal Screening

Mission: To decrease the number of women who drink alcohol during pregnancy.

Efforts may include, but are not limited to, the following areas:

  • developing universal screening for alcohol use for pregnant women;
  • enhancing collaboration/co-location between women’s health care and substance abuse providers;
  • outreach to HMOs and insurance providers;
  • advocating for screening/brief intervention by reproductive health care providers and WIC programs;
  • working with ACOG and OB/GYN providers around screening;
  • promoting “no alcohol during pregnancy” messages with pregnancy tests/prenatal packages.

3. Diagnosis and Screening of Children

Mission: To improve the quality and accessibility of diagnostic, screening and referral services for individuals with FASD.

Efforts may include, but are not limited to, the following areas:

  • identifying and assessing diagnostic/screening/referral capacity;
  • assessing training needs of diagnosticians;
  • developing standards and protocols for diagnosis and assessment;
  • promoting state-of-the-science services;
  • identifying opportunities to screen and assess;
  • promoting expansion of the NYS Congenital Malformations Registry to older age children.

4. Interventions and Treatment Services

Mission: To improve the quality, accessibility and continuity of treatment services and supports for individuals with FASD.

Efforts may include, but are not limited to, the following areas:

  • identifying and assessing treatment capacity;
  • addressing education & training needs of early intervention staff, Head Start, early childhood, and special ed. educators;
  • identifying and supporting best practices in treatment;
  • inventorying family supports;
  • breaking down interagency barriers to expand provision of appropriate services;
  • researching public/private financial supports for interventions and services.